Wednesday 30 July 2014

LGFB Icon Walk - Up at the O2

Having given you all a little rest from my fundraising escapades, I was getting a little restless, so  I have signed myself up for the LGFB Icon Walk- Up at the O2.

My Booby Buddies, Jo and Jan have also signed up and we shall 'hopefully' be joined by the #warpaint4life ladies, Kreena, Ellie and Maria (scared of heights he he!)

At least 100 people will all be creating a pink arch across the roof of the O2 to celebrate 20 years of Look Good Feel Better in the UK!!


It's going to be great being part of that…the views of London are going to be spectacular!!! I remember climbing Sydney Harbour Bridge in 2007 and it seems to be a similar set up, so this will also satisfy the adrenaline junkie in me! Yay!


It will be more of a challenge this time though, as my body is still recovering from treatment, and my fitness levels are not as they were….so 'my first personal physical challenge here I come' !!!!

I didn't know about 'Up at the O2' before  LGFB's event announcement…check out the 'Up at the O2' website and just do it!!!

Aunty Margaret and Uncle George from Spain have started the donations off with a very generous contribution to my minimum target of £100…. This is the minimum LGFB have asked for… but I want to try and exceed this….. I would be super grateful if you would motivate me along , by sponsoring me a little in my first physical challenge since my treatment!


Thank You -Aunty Margaret and Uncle George

Everyone has already given so much, so give ONLY if you can by clicking on this link ; Icon Walk -Just Giving page 

Every Little helps.. minimum donation is £2 x



Reality check!

After all the glamour and excitement of recent events, it was always going to be hard to follow my last blog post….!! Never the less….it was business as usual on Monday 21st July and a sharp reminder of my new normality when I had my 6th Herceptin injection .

Of course the hard stuff is done with, and the daily reminder that I have cancer is not there, but I realise that the ongoing cancer treatment will probably dominate my plans and thoughts for a long time.

This will be hidden from most and that is good, I say , but I hope that I find patience, understanding and even humour, when people notice changes in me.... particularly my rather 'dipsy' behaviour and forgetfulness!! Ha ha! I won't be the only one out there experiencing emotional battles from some sort of hidden story...so 'note to self' to be compassionate and forgiving with those around me that test my patience!!

I can't  say  Cancer/treatment necessarily preoccupies my thoughts intensely, 'but it's always there'. I have found the topics of health 'preoccupations' have shifted through each stage of my treatment.

I have of course had to deal silmutaneously with the break up of my relationship and this has not been easy, but since the decision  was made and people are aware, It has been a relief and I have been able to concentrate with full force, on my health and moving on.

It was always going to be difficult to write about the break up on my blog, in terms of affording respect for Steve's privacy. Ultimately this is part of MY ongoing story, shared from my own perspective, for my own therapeutic, cathartic purposes and void of unnecessary details and any malicious intent toward Steve, who is also going through life changes. I'm really pleased to say that we have mostly been working together well, in order to untangle our lives from each others.

Anyway , now ... I often find my self revisiting my prognosis and my general throughs are concerns of breast cancer 'reoccurrence'......... Saying that, I have reached a level of acceptance in terms of an uncertain future, and this has enabled me to focus my energies on decisions and actions that will fulfil my life.

I continue to allow my self 'some' private wobbly moments, because I do feel frightened about the potential for reoccurrence and missing out on things to come, particularly 'all things Danny and Dill'.....so it can be a relief to release some tears and pent up fears.

Now that I have had surgery, chemo, and radiotherapy, I ponder the question; 'am I still 'fighting cancer' or am I a 'survivor' yet'?.. Possibly to others I could be a survivor, however like I said 'it never leaves you', so may be in my world I will always be 'fighting it' ...the emotional fears at least.

If the cancer were to come back, I contemplate, how would I know. My cancer was not detected
through mammogram, ultra sound or MRI, so to rely on these is not a comfort to me. As such, my aim is to do all, within my power to reduce the chances of reoccurrence by eliminating unnecessary stress from my life, exercise, a good diet and generally looking after myself and turn the odds in my favour.

Anyway... My thoughts drifted a bit there...so back to the Herceptin ; I had a different the Health Care at Home nurse this time called Natalie.


After some polite introductions, down came my trousers, away went my dignity and in went the needle in my thigh ...as usual this was just a sharp prick, followed by 'THE STING' and some 'face contorting , eye popping, intake of break'  moments ...as the Herceptin was administered!!.


The process took 5 minutes and I was glad that Natalie let me distract myself with taking a picture for my blog!!! Ha ha !

Natalie spent the following two hours talking with me non stop, whilst watching me iron my
clothes for my trip to Spain to visit family. (More about this in my next blog)

My Radiotherapy treatment day's are well behind me...but the effects have continued .... The treatment immediately sent the treated area slightly discoloured. They used a rectangle jelly pad during treatment to draw out the radiation to the surface, and the discolouration is defined to the neat rectangle shape left by this pad.

A couple of days ago, about 12 days after the last treatment, nasty 'sun burn' type patches developed in my arm pit area and a couple of other areas. The skin luckily has not broken.There is also a swollen, tight numbness sensation, but I have not needed any pain killers. So, all is still very doable and you wouldn't know about this from looking at me unless of course you asked!

I am also 12 days into my Tamoxifen treatment. Initially I had an unsettled tummy with some short
lived diarrhoea ,.....Probably too much info ... Ha Ha! but I'm going for an informative style in this post!! I don't feel as hungry either and there is feeling of bloatedness... I'm told these symptoms subside and others may surface as Tamoxifen  is an anti-oestrogen drug and induces menopause type symptoms.

Weight gain is a concern for me and is common in ladies undergoing  breast cancer treatments due to the effects on hormones in the body. I have put on about 8lb since I was diagnosed and I was carrying a little unwanted weight before then. It's not necessarily the weight, it's the loss of body muscle tone that I lament! I was quite active and went to the gym regularly before I was diagnosed and I'm hoping now that I am more active this will help get me back to a weight and tone I am happy with.

The Tamoxifen symptoms will make this more of a challenge, however a healthy weight and excersize has been researched and documented as reducing chances of developing/reoccurrence of cancer so a little 'obsession' with weight  is justified!

I'm all done with the treatment talk, but I'm excited to say that, my new 'The Perfect Boob' website is taking shape nicely and I hope to share this with you soon.

I was also very surprised and delighted that the very lovely Ben Sheppard responded to a Tweet about my blog following the Lorraine show;

 "Great blog really lovely to meet you glad you enjoyed it all"

Yay!!

         

Saturday 19 July 2014

The Lorraine Show

What an absolutely amazing experience…I can't believe we survived LIVE TV without incident!


The night before our LIVE TV debut…. Danny, Ellie, her mum Nicky and I were chatting our nerves away with a little dutch courage at our Hotel….Danny and Nicky were giving us their advice;

so….Nicky's motherly advice to  Ellie; 'NO SWEARING'  lol!! A note 'to self' made too!… and my advice from Danny…or should I say a dare….try and sneak in a random word like 'banana leaf' into the interview. ha ha…my concern then, was that 'banana leaf' would stick in my mind and I would either blurt it out on live TV or it render me 'speech paralysed' for fear of saying it.. Thanks Son!

We woke bright and early and having popped on 'Bjorn' (wig) and 'plastered' on my #warpaint4life, we made our way to the ITV studios.

We were efficiently taken to the Lorraine 'Green Room' and prepared for the morning events. There was so many of us in the #warpaint4life entourage ', we took over the whole room. ooops!


Danny and I in the 'Green Room'
We were hooked up with microphones… and all of us except Maria, had to take off our carefully chosen 'statement necklaces' due to noise interference.

Wayne Sleep, British talent at it's best and a personal favourite,  soon lit up the room with his grace and humour. He came over to us, 'curious and interested' and chatted a while with us until he was ushered into make up!


Wayne was a Master Chef contender and was there to chat to Lorraine about that…..I hadn't realised until writing this post that it was in fact Wayne's birthday that day… so here's sending him happy belated birthday wishes…

In fact …Wayne shares his birthday with someone else worthy of a big mention…#warpaint4life's very own photographer,  Josh van Gelder celebrated his birthday too x

Happy Birthday Josh x
We also chatted a little to Michelle Heaton and saw her children.  I found her highly personable and this eased my own nerves about appearing on the Lorraine show.  Michelle spoke about some of her charity awareness raising work …and she struck me as a 'girl who just gets it '….like me…. who wants to make a positive difference out of her misfortune.

Michelle has the BRAC2 gene, and went on to talk to Lorraine on her show about the tough decisions she has made to reduce her chances of developing cancer. Sharing her story will undoubtedly help others in their own choices.


There was such an air of  familiarity when I came face to face with some of the ITV personalities that morning. In my mind, it felt as if  I'd known them personally for years, obviously because of watching them on TV or reading about them in the news and magazines.

It was really bizarre,  my instant reaction when I saw Richard Arnold (presenter/editor) was to say 'Hello' as if greeting an old friend … he reciprocated, with a smile and a greeting , but I'm sure he though 'who the hell was she!


On our way down a corridor Ellie and I, were keenly following a lady, (not sure of her official title) to the makeup area, and we were conscious of someone behind us that the lady was speaking to… we thought nothing of it , until I turned around and saw Dr Hilary Jones…. again familiarity sneaked in and I said to him 'it's Hilary Jones'…Duhh!!... of course he knows who he is!!  One of my  'I carried a water melon' moments!….. never the less a charming man, who chatted to us about our shoes!


I now actually 'get' how some people, form relationships in their own minds with celebrities and TV personalities , claim them as best friends and stalk them…. you'll be please to know that the stalker in me was kept at bay……that is until Krenna, Nikki (Ellie's mum) and I, saw the rather delicious, Ben Sheppard, interrupted a conversation he was having with Wayne Sleep and asked for a picture!


Our groupy behaviour was rewarded with a a rather blurry picture, never the less; the memory will be captured in our minds and now on this blog post! Yay!…. Just incase Mr Sheppard were to read this…(lol) and he had a thought to invite us back for a picture… just to let him know we  would gladly acquiesce! he he!
A picture opportunity with Wayne Sleep
The opportunity  to chat with Lorraine before or after the show was not there…I would  loved to have chatted to Lorraine about the award she received at the Inspiration for Women award #IAUK, last year…and get a sense of what it will be like when I go this October to fulfil my duties as a blogger! May be next time Lorraine??

The first time we spoke with Lorraine was on THAT sofa….LIVE on TV… eeeekk! ….Martin, the researcher had gone through an outline of the questions we could be asked….but any rehearsal in our minds just evaporated, as Lorraine worked her magic and drew the spontaneity from our responses in the way she only knows how.

The only pic with Lorraine ..he he!!
The interview went so quickly and we had sooooo much more to say. There were some limits about what could be said and shown about the charity and it is our hope that we did LGFB justice and got the important messages out there about the #warpaint4life campaign.



There is a clip of the interview and a link to LGFB on  The Lorraine website. We have also made it to the Lorraine face book page (please click the link, like and leave a comment - remember #warpaint4life is going for world domination!)


We were all absolutely buzzing after the interview and we were relieved to have a 'pat on the back' for a job well done from SJ, LGFB executive director and Carly, PR and communications manager!


The 'LGFB entourage', ended 'the Lorraine experience' with a breakfast treat on the south bank, where we plotted  #warpaint4life campaign world domination. lol!

The next time we shall meet will be on the 7th September at the LGFB Icon Walk- Up at the O2. LGFB will be creating a 'pink arch across the roof of the O2 to celebrate 20 years of Look Good Feel Better in the UK'. Individually we hope to raise some money too..so keep a look out here if you fancy sponsoring me! 

Kreena, Danny and I went on to enjoy a chocolate tour of London and  theatre show , before  finally making our way home that night to watch the Lorraine interview and face the email and FB message overload!!
…with Tom the chocolate tour guide!
Theatre selfie x
I went through the day on pure adrenaline, dismissing treatment fatigue and sacrificing the next couple of day's to aches and pains and tiredness ….. but I would do it all over again in a flash… for I was transported out of the 'cancer world' into a day of indulgence and diversions with my 'favourite son!'

UPDATE: My Blog is getting a complete make over thanks to Becky Dudley. You will notice some changes from Monday and you will finally be able to leave messages!! Yay!

Wednesday 16 July 2014

#warpaint4life -Going for World Domination!

The #warpaint4life ad campaign is gaining momentum and making it's TV debut on the Lorraine Show on ITV!

Maria, Ellie, Kreena and I will be chatting to Lorraine on Thursday 17th July 2014, between 8.30 to 9.30,  about LGFB and the #warpaint4life campaign!



I think I speak for us all, in saying that we are all feeling nervously excited about it all and we are looking forward to highlighting the important role LGFB plays in the treatment/recovery of cancer.

I have known for a couple of weeks about the show and now that the travel arrangements have been made and we have spoken with the ITV researcher it feels 'real enough' to be able to SHOUT ABOUT IT !!! lol

Who knew when I attended the LGFB workshop in January that I would be appearing on TV …what an amazing opportunity to make a difference !

After the initial excitement of appearing on TV subsided, the energy turned to panic about the most important  question….. 'what to wear' !!! lol..

I owe thanks to the lovely ladies at Berties in Northampton, who let me have 'a play' with their lovely clothes and for helping me select my outfit !! I've gone out of my comfort zone and raised my game in terms of colour … so I'm all prepared!!


This was quite a unique shopping experience, in that the ladies fussed about me and seated me in front of a mirror to show me what I would look like in my outfit, simulating the sofa chat with Lorraine!! ha ha!…

'Bjorn' my wig, will be having a trim and blow dry later today in preparation.  Chloe, my hair stylist from Toni and Guy, Northampton recently attended a training course for wigs and I look forward to taking advantage of her newly acquired skills! I have really missed the 'salon' experience since loosing my hair… so it will be nice to just be 'normal' !

And as if that isn't excitement enough…. I also made it in the Mail on Sunday 'You' magazine on 13th July 2014.


Thank You,  Dawn for spotting this and telling me about it at 9.40pm Sunday night….lol!!  I was all settled for the evening in my PJ's and I had to dress quickly and make a mad dart to find the only copy left in Northampton before the shops closed !!!  We nearly missed it!!….Thankfully a friend , Caroline Robinson, who works for the Mail on Sunday, has come to the rescue and found some extra copies for the family and friend's that missed it x

An added bonus of the whole Lorraine experience is spending time with Danny, my son.  Danny and I will be travelling to London tonight and after the Lorraine show we will be going  with Kreena on a Chocolate Tour of London (YUM!) and going to see the The woman in black at the theatre. Memory making at it's best!

So…..Whether you are popping to the shops or appearing on live TV …  #warpaint4life makes a difference to women facing cancer! Please share the campaign and help LGFB reach as many ladies as possible.

'You use it to face the day… we use it to face cancer -'

Campaign video - bit.ly/warpaint4life 




Tuesday 15 July 2014

'Peace in my heart and regret far from my mind'

Within my cancer experience, there have been many blessings. The distractions I have sought, and the encouragement I have received, has supported me a long the way, and particularly through the biggest emotional challenge so far…and with that , I am sad to say, that Steve and I have ended our relationship.

It perhaps won't be a surprise to you, but things have been tough for a long time. The physical and emotional rejection has been the most devastating part of my cancer story……By my final chemo my mind was decided, and Steve and I have since been in a state of ongoing transition.

The LGFB attitude  has truly helped with my confidence throughout this period and it has empowered me to make some  tough decisions.

We planned to share our news with our friends and  loved ones after my treatment and this has afforded us both time to come to terms with it all. I  mourned the loss of the relationship during my chemo treatment and today can comment on the news from a position of strength and optimism.


Cancer is tough on relationships, Steve and I are not the first and won't be the last victims of a cancer break up. There is help out there for couples and people do overcome the cancer relationship curse,  however in my story, it is with confidence that I say that this is the right thing for me!

Cancer changed the dynamics of our relationship, where my needs were thrust to the forefront. It also magnified innate characteristics within me, that has seen me challenge cancer, with strength and determination... just as cancer seems to have exposed and magnified aspects of Steve (in my opinion) that has made it impossible for me to imagine a future with him.

If this cancer experience is to be my practice run…. and should it return and ultimately claim my life… I want my final day's to be lived to the full , with 'peace in my heart and regret far from my mind'.

Steve has found my cancer undoubtably tough. I am truly sorry that he has had to go through it.  Those that know Steve,  know that he is lovely father, good friend and an accomplished business man. I am thankful  of the lovely times we have shared over four and half years and I for certain will be taking away with me some wonderful memories and lasting friendships.

I'm feeling a little 'physically broken' by cancer and bruised by the rejection, but the #LGFB attitude is seeing me through. I wonder what my future holds, however my mind is alert with hopes, dreams, possibilities and I am excited about future well lived x

Wednesday 9 July 2014

Radio' Review Revelations!

There were no revelations as such , I just wanted to impress my DIL (daughter in Law) with my use of alliteration!!…(private joke!) but there was indeed a review on 7th July 2014, when I met with a Radiographer to discuss my progress.

The Radiographer was as attentive and thorough as the last. I have experienced changes to the skin tissue around the area that has been treated and there is some slight soreness/reddening and swelling. Tiredness/fatigue has been the most notable side effect so far, although this has not prevented me from getting into 'mischief' as much as the chemo tiredness/fatigue did. My memory has also taken a 'beating' otherwise I have felt quite well.

All these are pretty much standard side effects. Through a catch up with Booby Jo, I was already aware from her that the radiotherapy treatment keeps on working after the treatment has finished.

A pair of perfect Boob's- Vivian meets her twin sister, Charity - Lol!
Booby Jo experienced few side effects to her skin during her treatment, however 10 day's after her final treatment, she developed burns covering the whole of her breast area and blisters under her arm. It looked so painful, and as always, Booby Jo has taken it in her stride ….Thankfully, I've been told that this is not common reaction and thanks to Booby Jo, I feel prepared should the side effect befall me.

Having 'Booby Buddies' has certainly been one of the greatest supports in terms of bouncing off experiences and sharing knowledge!

I write this post on the FINAL day of my radiotherapy treatment and I look forward to marking the occasion by a celebratory lunch with Mary, at the Stuffed Olive in Northampton !



My whole radiotherapy experience has gone really quickly, despite the delays each day ….!!  In fact I have been quite disappointed, on the few occasions that they have been on time as it has disrupted my  protected time for mind space and reading! lol!

In terms of the delays and the 'inconveniences' of cancer treatment, 'Hakuna Mata'  seems the perfect moto…. All has been doable and very necessary;  I am pleased to put the hard stuff behind me and I'm looking forward to getting on with my new normality!

No Worries - We have all sung this at some point in our life!!
I take full responsibility for the theme tune that will now be playing in your head all day after reading this!!

As for what happens with my treatment after today; I will continue with the Herceptin treatment  every three weeks for one year .This was administered  for the first time at home on 30th June 2014 by 'Blessing',  a Nurse from a private health company and involved a quick injection and a two hour monitored period.

For as long as I am on Herceptin, my heart will be monitored via 12 weekly echocardiogram's and I duly attended NGH for one recently on 8th June 2014.

I will also be starting my Tamoxifen treatment on 10th July 2014, so Milly and I picked up my first prescription in preparation for the 10 year treatment regime!


As for what happens with my life after today; I will revel in the possibilities!

WATCH THIS SPACE- There is some very exciting news on the #warpaint4life, #LGFB front…..I hope to update you very soon!!!

Remember to nominate the inspirational ladies in your life: #IAUK http://www.inspirationawards.co.uk/voting/index.php

Saturday 5 July 2014

#Inspiration Awards for Women

It seems my friend Jackie Drew has been up to mischief… lol!  Jackie has been in touch with Inspiration Awards for Women (IAW) and told them about my blog.


Imagine my delight, when I opened up an email from IAW asking me whether I would be interested in raising awareness of the forthcoming Inspirational Awards for Women ceremony through my blog, and then asking me to attend the event on 2nd October 2014, so I can blog about the night afterwards!!!

I wasn't fully aware of what Inspirational Awards for Women was all about, but I soon learnt that as well as celebrating women, the awards seek to raise awareness and money for 'Breakthrough Breast Cancer', and I found that the heart of its 'mission' resonates with my own aspirations... so of course I was going to be involved!

 "giving the next generation, role models that show it is possible to have a sense of status, achievement and success by conducting one-self in a manner that is inspirational"
Sky Andrews -Mission Statement 

Since responding to the email, I have been wading through 'chemo/treacle brain' induced 'writers block', to find the perfect words to describe how worthy IAW is of your attention .

The awards will acknowledge Britain's most inspirational women at an 'oscar style' event being held at the prestigious, Cadogan Hall in Chelsea. Check out the website and save the date!!        



The stories and achievements of the women that were celebrated last year are just so motivational and up lifting.
Bernie Nolan- Inspirational Determination
You can get a flavour of the awards by watching the IAW 2013 highlights on YouTube;


I'm sure there are remarkable women in your lives that deserve to be celebrated… and this is a unique chance for you to nominate them for an Inspiration Award for Women 2014!

So press 'PAUSE' on your busy lives and click the link to make your nomination before 15th August 2014. A 100 word biography and a few details is all it takes;

To say that I am excited about attending the event is an understatement.  I'm not entirely sure which sounds more exciting, mingling with the stars, or listening to inspirational stories or just being at an evening all about women!

What is for certain, is that Jackie and I will need to go shopping for a posh new 'frock', and our #warpaint4life will be more important than ever, when we saunter along the pink carpet at Cadogan Hall!  As alway's , I'll be absorbing every detail and sharing the highlights on my blog! 

But don't worry, you can go too…. Check out and 'like' the IAW Facebook page and follow on twitter to keep a lookout for ticket release.

https://www.facebook.com/InspirationAwards
https://twitter.com/womensawards


Thank you Jackie for launching my new blog career and opening up this wonderful opportunity. Lol!

Jackie and Spud x


Watch this space for a VERY exciting update on the #warpaint4life campaign !! bit.ly/warpaint4life